Got to restart somewhere

I have meant to hop on here many, many times to restart this up.  Many things have changed since our last post. We have had many adventures, and continue to have adventures now.  I have asked myself how this is going to go in the next couple weeks and months.  Hopefully I do our family justice, and possibly help others going down similar roads.  I have found great comfort in reading other blogs, and speaking to others who have walked this road.  But ultimately, I need an outlet to get some of the feelings out.  I am not a person that writes, but its worth a shot.

Currently Sage is end stage renal failure and is on hospice care.  In typical Sagey way, she is doing this on her own terms.  Defying the doctor's expectations and living life to it fullest.  That is what Mark and I wanted when we started this most recent journey, if not our whole journey with Sage.  We felt quality of life is much more important than quantity of life.  Time and time again she has shown us that she wants to be free to do what she wants to do.  Anyone that truly knows Sage, knows dialysis is/was NOT an option.  She is too active to sit/lay still to be hooked up to a machine.  She made it clear that there was no time for transplant, that was not what she wanted.  Many issues play into why she is not a candidate at this time.  

So here we are walking a walk that no one would ever wish to walk.  But we do it knowing that it is the best decision for her and our family that we can make with what we have been dealt.  Does not mean that we don't re-evaluate it on a daily if not sometimes hourly basis.  We have our moments where we are reminded that we are on a shorter path than we would like, but right now we are trying to do our best do just keep going and enjoy our happy Sage while we have had it.  Hopefully, I can share the happy times, but also the hard times.