Coming out of the fog

First off I must apologize for being gone so long. I come here on a daily basis, but just can not seem to muster the ability to post.

I think I am finally clearing the fog away and starting to move towards finding a norm again. I recognize that might change, but we are trying.

We did order the "wheelchair" for Sage. I never fully understood what an undertaking this might be. I can remember my parents going through the process of getting a wheelchair for my mom, but I was so far removed from the process. I tried to ask her how she got the process moving along, but she doesn't remember.

We are still working on getting Sage's hearing aids. She currently has "loaners" from USDB, but we need to get them back to them so that some other little child can use them. I can not express how wonderful it was to have that opportunity to try before you buy. Sage is such a complex child that we were not sure that hearing aids would be of any benefit to her. I truly believe that she has been telling us for so long that her ears don't work. Now we have to find a way to keep them on her. She uses her head to scoot herself around, and knocks them off constantly.

Sage also had her initial visit to Schriner's yesterday. They are fitting her for AFO's. I am so excited to see how these will help our little angel. I let Mark pick out the color and design. Hopefully Sage won't hate me when she gets older.

Little miss Fay is doing wonderful. She has started first grade and is loving it. I love to see her excitement. She has a wonderful teacher this year. I have to say this year was hard. The realization that my little girl is growing up and going to school for a full day. But it doesn't even phase her.

Now back to work. Just had to take a break.

New to Blogging

I am new to this, and hope that I can make a productive blog.

We are the Hudson's. My husband, Mark, and I are the proud parents of two wonderful girls. Fay, 5, is actually our niece, but we have always known she was meant to be our daughter. She has been our first daughter for over three years. We are in the final stages of getting custody of her. She has just started Kindergarten this year and is loving it.

Fay is the big sister to Sage, 8 months. Sage has recently been diagnosed Joubert Syndrome. We are in the process of finding out what this means for her. She is our little child who is growing at her own pace. She is blind and developmentally delayed. She is a happy child who is teaching us patience.